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    Involvement

    Experiences

    September 2025 - Present

    South Carolina Rare - Founder & CEO

    July 2025 - Present

    Rare Disease Diversity Coalition
    • Patient Provider Caregiver Journey (PPCJ) Working Group Member
    • Patient Caregiver Advisory Board (PCAB) Member

    August 2022 - Present

    Rare Disease Legislative Advocates (RDLA)
    • 2025 Virtual Youth & Teen Hill Advocacy Day Mentor
    • 2025 Rare Across America Team Coordinator
    • Rare Across America Participant (2022, 2025)

    February 2022 - Present

    South Carolina Representative - Young Adult Rare Representatives (YARR)
    • 2025 YARR Leadership Academy Graduate
    • 2022 YARR Speakers Bureau Participate

    May 2023

    AnMed Pre-Med Boot Camp

    June 2021

    Medicine Fellow - SC AHEC Summer Careers Academy
    • 1st Place Group Winner for Capstone Project titled "The Impact of Covid-19 on Mental Health in Minority Populations

    March 2019 - January 2020

    VirtualSC Student Advisory Board Member

    Internships

    Fall 2022

    Early Learning Partnership of York County - Rock Hill, South Carolina

    Summer 2022

    CareSouth Carolina Marketing - Hartsville, South Carolina

    Research Presentations

    Included below are my oral and poster presentations relating to my undergraduate research titled "Infant Mortality in South Carolina: How Underlying Factors Play a Significant Role."

    May 2022

    Poster Presentation; 2022 Houk Prize Finalists Poster Session; Rock Hill, South Carolina

    April 2022

    Oral Presentation; 2022 Showcase of Undergraduate Research and Creative Endeavors (SOURCE) at Winthrop University; Rock Hill, South Carolina

    April 2022

    Oral Presentation; 2022 Winthrop University Biology Department Seminar Series; Rock Hill, South Carolina

    March 2022

    Poster Presentation; 2022 South Carolina Public Health Association Annual Meeting; Myrtle Beach, South Carolina

    Prior Speaking Engagements

    May 2025

    Appeared on 1 of 20 Podcast Episode titled "Healthcare in Rural Communities and ITP/hEDS" sharing about my patient experience

    February 2025

    Speaker at Northwestern University's Chronic Illness Alliance Annual Rare Disease Month Meeting

    September 2023

    Panelist on "Accessibility Panel" at 2023 The Rare Fair event presented by The Dash Alliance and Rare Revolution Magazine in Raleigh, NC

    December 2022

    Keynote Speaker at Northeastern Technical College's 2022 Winter Commencement ceremony

    April 2022

    Keynote Speaker at 2022 South Carolina Phi Theta Kappa All-State Academic Team Recognition ceremony

    February 2022

    Panelist on Rural Tech Talk presented by Spectrum Internet and Northeastern Technical College on "The Opportunities and Challenges of Digital Equity"

    May 2021

    Presenter at AACC Digital Conference on "Ensuring Student Persistence when Wi-Fi and Broadband is Limited" session

    December 2020

    Panelist at National D2L Fusion Conference on "The Pivot to Remote Learning During Covid-19" session

    Honors/Awards

    2022

    USC Maternal and Child Health Catalyst Program Abstract Poster Contest - Honorable Mention

    2021

    South Carolina Palmetto Fellow

    2021

    South Carolina STEM Signing Day Honoree

    2021

    Phi Theta Kappa 2021 All-State Academic Team

    2021

    Burger King Scholar

    2021

    Cooke College Scholarship Semifinalist

    2020

    Carson Scholar

    Contact Me

    Hi! Please feel free to leave your contact information and message below if you are interested in getting in contact with me. Thank you and I will get back in contact with you soon!

    © 2025 by Carol Shea Linton. Powered and secured by Wix

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